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Muscular Dystrophy: theFacts
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Muscular Dystrophy: theFacts
Muscular Dystrophy: theFacts

List Price: $22.50
Amazon Price: $18.74

Average Customer Rating: (2 reviews)

Editorial Review: The muscular dystrophies are a group of genetic diseases that severely affect children and adults. For sufferers and their family, the illness presents enormous physical and psychological challenges. Written specifically for people with muscular dystrophy and their families, this new edition of Muscular dystrophy: the facts answers many of the questions asked about how and why it occurs, and how it will affect the life of a recently diagnosed child. Throughout, the different types of muscular dystrophy are described with a minimum of technical jargon. Questions relating to exercise, physiotherapy, surgery, and the emotional effects of the diseases are answered, and advice given on the problems of schooling and choice of career. Since publication of the 1st edition, the genes for almost all the different types of dystrophy have been identified, enabling prevention through genetic counselling, and relieving some of the worry for affected families. Drawn from his many years of experien...

Customer Reviews:

3 of 3 found this review helpful:
ok on facts, light on sense, 2005-09-14
The medical aspects are dealt with fairly accessibly, but troubles me is the author's tone throughout the book - patronising, and his tendency to make statements that belie an extraordinary ignorance of human beings. What kind of weirdo would write a sentence like "....of course, the death of a child is always tragic, even when it is expected"?

There are a few such pronouncements in the book, but the whole thing is saturated with that strange arrogance that only doctors seem to manage - I think it comes from dealing so much with "the sick" and "suffering" family members, that they start thinking that doctors are some higher breed of "healthy" humans who are on earth to offer hope to poor unfortunates.

I would not recommend this book for parents.

3 of 3 found this review helpful:
A great source of information, 2001-01-02
This book uses easy to understand language to explain the complexities of this group of disorders. It is a good first book for individuals and families faced with the likelihood or reality of a muscular dystrophy diagnosis.

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